Comments on: LeeAnn Taylor

By: Marina

Marina — Tue, 08 Sep 2009 18:48:39 +0000

LeeAnn, Thank you for sharing this with me! Only those of us who have disabled children can really understand………but you put it so beautifully! You are truly blessed….by amazing and beautiful children, and by a loving spirit.

By: kathleen berton

kathleen berton — Mon, 07 Sep 2009 01:21:06 +0000

I read the article about leeann taylor and knew exactly how her daughter felt, and leeann, i am a single mother of two fraigle x boys, and i know the
feeling of wanting something normal, but i would never trade what i have, my two little angels, and our life is normal for us….

By: Perla

Perla — Fri, 04 Sep 2009 02:32:43 +0000

Thanks for sharing your experience. I have two beautiful nephews with FragileX. Your words help put things into perspective.

By: Neal Robb

Neal Robb — Fri, 04 Sep 2009 01:22:09 +0000

LeeAnn, yours is an important story, not only to make people more aware of Fragile X syndrome, but also to let those who are just starting down this road, or similar roads as caretakers of children with severe disabilities, about (to borrow your words) the “exquisite moments when you celebrate these special children.” There are hard times, sure, but also moments of great joy, love, and satisfaction. Thank you for opening up your world to the rest of us. -Neal

By: Isabel

Isabel — Wed, 02 Sep 2009 22:35:34 +0000

Your example of unfailing love is an inspiration to me.

By: Matt Sutherland

Matt Sutherland — Wed, 02 Sep 2009 16:27:02 +0000

I hope you know how lucky we all are to know someone as strong and special as you, LeeAnn. You make all of our lives better by the films, books, articles and moments you share with us. Thank you!

By: Liz Hales

Liz Hales — Wed, 02 Sep 2009 16:16:38 +0000

LeeAnn,

Bluetiful, all the way. Im so blessed to have you in my life! You are truly inspiring to me and others around you. I look forward to your book! To get the whole story! Liz

By: Keith C. (Dad)

Keith C. (Dad) — Thu, 27 Aug 2009 12:10:35 +0000

LeeAnn,
Just going through E-mails and deleting them. I’d been told about this article but missed seeing it myself. It made me cry. I just never can be reminded enough of how blessed Terrie and I have been and are. You are a hero. I had enough worries and heart ache just raising 6 “normal” (and sometimes I wonder what is normal) children. Grey hair. Love, Keith (Dad) Thanks

By: M. Ackermann

M. Ackermann — Tue, 11 Aug 2009 20:41:13 +0000

Important information and feelings to share. We all need the reminders of the precious blessings of simple events. We cannot take life for granted, and we must all be open to the families and individuals who are unique, and share life with them.\We have two Fragile X grandchildren who have a 7year old unaffected sister. We understand and hope many others who read this article will, now, also understand.

By: Dani Steiger

Dani Steiger — Mon, 10 Aug 2009 17:32:43 +0000

Precious LeeAnn! You are such an outstanding example of the love and understanding of our FX’ers…congratulations on sharing your story, your intense motherhood energy and your light! All the darkness in the world cannot put out a single candle…that’s why fragile X kids have such great smiles – they light our lives!